Markdown lines 463–598 · Part 4 of 4
again, remember that Mealtimes are very challenging for him, we're all of us having something
to eat from this picnic. There, the Hemi sync is off at this point. He is when he's ready for some
of the food. He his pattern stops his movement very much. That's where he's comfortable
looks what he's doing what's very easily into his mouth. And at times within shift to looking at
his mom or dad or me
52:35
when you said for other things.
52:44
I'm also watching him for any signs of his initiating, that he wants the music.
52:53
Next piece, yeah.
52:58
So we look for the subtle changes, even with his movements, does he stopped them
intermittently? Are they more varied, et cetera? And the answer to all of that was yes. It's the
small quality of looking at the quality of what he does. In all of this. I know there's your beautiful
foot, he invites me to play with his foot, he gets a lot of eye contact with me. He often would
hand me his foot when he wanted deep pressure stimulation joined him doing all kinds of
paths. So this is what we're doing. The speakers are off. And I'm not I think I'm going to move
through this a little bit. He does point to his ear which point I immediately turn the back on
there always are questions of sensory choices. How do we look at choices within this kind of
an environment for a child? And when does the child tell us that that's enough? You know, he
loves this. But they're also for any of us is a point where we finished with it. It's it's we need to
move on. And it may be moving on to a different piece of music. Or it may be I'm ready to do
something else. I was also using drums with him. He responded very well. When in getting
more organized with just the single beat of the drum or the drum in a heartbeat. Eat type of
rhythm
55:06
toward the end of a session, he often tense when he's ready to move on. He escalates the
movement a little bit within himself. He's, he's a child who does not make change real easily.
And often as he anticipates the need for a change. He can get pretty, pretty active with things.
Here comes the music again. I think this was at the point where I changed from Angel paradise
to waves of love, which is what yeah, this is where I'm changing it. Waves of love yesterday,
which is the second one that he sees that he knows is being changed. I think he understands
the words. He knows where the music's coming from. gets himself ready.
56:10
This is the one that has the ocean, Dolphin dolphins.
56:16
And watch his response. There's a part of him that says, Yeah, I'm ready to move on to
something else. But then he scoots himself back and gets himself more comfortable on my lap
says, Oh, yes, thank you.
56:36
Yes, it is. It is incredible. It truly is incredible. Yes, the ideas of the connection and his being a
fuller participant in their family has been such a gift to all of us. One of the things that is an
incredible gift for me is this family has planned a month long time in the United States and in
April. And they are coming here to my home on the new land. He now needs for about four
days, he now needs to move into dance. Joining this now is a more active music. This is in the
essential sound series from the set called uplifting. Here you see Mom joining him. Yes with
the following and I enjoying with the following as well. You know and it's really kind of a way of
celebrating and have he so often with this would do this. And then he looked at what we were
doing and then he shifted slightly dad's joined us now in the following. So it becomes an
inclusive activity, not excellent. But it also may be there are times when you need some
exclusivity, where he's not having to be with a person. So of honoring whatever it is that he is
saying that his system needs or that he delights in. Okay. Thank you. Beautiful kid, let me I'm
gonna need to move. I get about five or 10 more minutes. And let me kind of wrap this up.
Since I have talked with his family by email. And in the last week or so, they have been using
Hemi sync daily at home, predominantly at bedtime, but also before meals sometimes during
meals. And very frequently during the car rides which often were very challenging for him. One
of the common things that they have said in emails all along is Ulus has become such a happy
child. To me, that is the essence. He has continued to grow and his focus of attention is
mealtime changes. And there has been a major reduction in seizures for a four month period of
time. He has had almost no seizures. Now there's another fascinating connection. You know,
you look at something like this and you say, Ah yes. The weekend of March 4, he had four very
severe seizures. Nobody knew why. And so the question is, what's all that? about what is it
about. And, again, the constant invitation to grow. One of my best guesses was that it had to
do with increased stress levels of their planning the trip here to the States, your list is not much
care for change, and, or for uncertainty. And they're bringing all four kids, it's gonna be
wonderful. But things are a little chaotic at home. He also during the same time period, has lost
the constant companionship of a young woman who is his helper or aide at home, in their
home training program. And in the kindergarten, she has taken another job. So there have
been some major shifts in his life. Now, this is a place that I'd like to pull this together a bit,
asking the questions, what is it, if anything about him anything that has contributed to all of
this? What are the connections, and I have a high set of observations. One is that when Hemi
Sync has been added, the sensory overload has been reduced. And sensory processing has
gotten better is this the connection is this the link? As improvement comes in sensory
processing? Do we have a we see a reduction in the uncontrolled seizure frequency. And so
again, going back to a set of proposed connections among these three areas, I have a
hypothesis that I am very interested in and hopefully, we'll be able to find the ways of checking
it out. I think there are children whose seizures are triggered by sensory overload and sensory
processing difficulties. Hemi sync improves sensory organization and processing. I see this in
child after child after child and also in my own experience, and that with better sensory
processing, we probably have fewer triggers for the seizures. And that with this, then, if they're
not being triggered as often, this is going to affect the frequency and severity of the seizure
behaviors. I think it's important to emphasize we are not I am not talking about something that
cures seizures. The seizures are probably still there, we don't know how much change there
actually is within the brain itself. And they may reoccur in stressful situations. Again, I think
Yuliya seizures in the last couple of weeks have taught me a lot. Because they've said that,
yes, there still is something there that can set them off, whether it's random, or whether it's
internal stress. We know from adult reports of adults who have seizures, that stress is one of
the big ones that can trigger trigger a seizure. But a reduction in seizures, simply by reducing
what sensory triggers are possible, can lead to a much higher quality of life for the child and
family. We could ask other other children like Julius and my answer is a resounding yes, I have
worked now with five of them. And all of them had similar histories of sensory processing
difficulties, uncontrolled seizures, positive response to Hemi sync, and a correlation with a
major reduction in seizures. I think all of this has led me then to the connections with thoughts
about research because I think we need research in this area. It's kind of a tickler for me, what
is going on? And at a at an inner intuitive level. And combined with external observations. I
know it's making a difference. I don't have to have the research, but I want the research. You
know, I want both of them.
1:04:32
We need to if research is done, we need to identify a population of young kids who have this
combination of seizures, preferably uncontrolled ones, and a sensory processing disorder.
They're not a huge population. So we'd have to look for them. Developing a good listening
protocol and identifying those kids who have a positive response to the Hemi sync and then
documenting them The response if you know when Hemi sync is used, documenting the
number of seizures for a given period of time before, during, and after the use of this. This
poses a whole bunch of challenges because it's not totally simple. We don't have any research
on Hemi sync and sensory processing. We know there's no research on sensory processing
and seizures. We know for example, that there is a category of seizures, called reflex seizures,
where a seizure can be triggered by certain sensory inputs. But it's very specific, it may be light
flickering at a given frequency. It's not what we're talking about. Here, we're talking about a
more general thing. I think that when use careful of the area of case reports is where we start
of documenting this, when used carefully and with good observation. Hemi sync appears to me
to be a safe, effective and very inexpensive approach to helping children with sensory
processing disorders, including those who have seizures. And research is very important
because it could validate the use of Hemi sync as a non invasive clinical tool for seizure
management. We need published research for physicians to consider this as a viable adjunct
to the medical management of seizures. And I think that that is so so important. So let's
continue to explore the connections and know that what we know already, these connections
can make a huge difference in the lives of children and their families and in the lives of those of
us who are connected to them. And I thank Bob Monroe every day for the gift that he gave the
gift of Hemi sync and the gift of His probably most famous statement. Go inside and find out for
yourself. Go find out thank you okay,